My Name is Craig Silko. I have been suffering from LPHS since I was 12 years old. I was actually diagnosed when I was 17 because it took so long to rule out every other possible medical reasoning behind the constant pain and blood in urine. I have been treated with many medications but none actually rid the pain completely. Under the advise of my first surgeon (Dr. John Marks, NYC), I went to a surgeon (Dr. Zelik Frischer, SUNY Stony Brook, Long Island, NY) to undergo a Renal Autotransplantation. Dr. Frischer performed the surgery in May of 2000 when I was 13 years into the syndrome.

I am a 43 yr old female with a long history of kidney stones going back 18 yrs. 2 yrs ago I started having chronic left sided kidney pain with the same type of symptoms as the stones however no stones. It has taken me the full 2 years to convince the medical community I am not a drug addict nor am I suffering from a mental disorder of any kind. I am currently being treated by the pain clinic in my area and along with oral narcotic medication I am getting injections into the nerve area around my kidney with long acting anestetic medication.

hi i'm 21 years old and 5 weeks ago i was diagnosed with lphs. it took the doctors 5 years and 17 ops to finally diagnose me.

i dont see how doctors can leave a human being in pain as its against there Hippocratic oath. if i was an animal they would put me down as i'm a human i have to live with the pain but i dont think i can.

i am looking for people who know what i am going through because i need to talk to them . right now there is no light at the end of the tunnel.